Your Data Matters

The National Data Opt-Out Programme is a sevice that enables patients to opt out of having their data shared for research and/or planning purposes.

The current NHS Digital (NHSD) extract of GP data for Research purposes (known as the GPDPR) has been delayed due to NHSD wishing to review the way in which this data will be collected, to conduct more public involvement and information about the plans and change the way in which patients can opt out of the extract of their GP data.


Currently the only way to opt out is to complete a Type 1 opt out form and return this to the practice by the 1st September.  However, this extract will not be taken until the NHSD have changed the way it will take the data and respect the patient’s choice for using their data.  NHSD are introducing the following changes to the opt out process which will mean that patients will be able to change their opt-out status at any time::-



This means that you can opt out at any time in the future and NHSD will delete data that they already have taken for research purposes, the deadline of the 01/09/2020 has been delayed until a new system of opt out is developed.  Hopefully, this will be a simple centralised approach via the NHS app or NHS website to avoid paper form and administration work for your GP.


We will update you when we know more about the NHSD plans to change how you can control who has access to your data.


Your Information

Your confidential patient information is used for two different purposes:

  1. Your individual care - to help with your treatment and care
  2. Research and planning - to help plan and improve health services and to help research and develop cures for serious illnesses.

Benefits of Data Sharing

Research - helping to find cures and better treatments for diseases such as diabetes and cancer

Planning - helping the NHS and local authorities plan where they need to provide further care services more efficiently.

Who can use your data?

Confidential patient information is used to support the delivery of health and social care. Research bodies and organisations can request access to your data. These include:

Access will not be given (unless specifically requested by you) for marketing or insurance purposes.

Data Protection

Protection of your confidential patient information is taken very seriously and every step is taken at Skegby Family Medical Centre to ensure that your data remains secure and anonymised wherever possible.

Your Choice

Your confidential patient information will still be used to support your individual care and this cannot be changed.

If you are happy for your information to be used for research and planning then you do not need to do anything.

If you do not want your confidential patient information to be used for research and planning then you can choose to opt out of this, however there may be specidic situationa where your data may still be used (eg. during an epidemic where others heath is at risk).

If you choose to opt out, your decision will only apply within health and social care systems in England.

Opting out

To opt out online please click here to be taken to the appropriate webpage.

To opt out by telephone please call 0300 303 5678.

More Information

For more information please follow the links below.

NHS choices - Your Data Matters to the NHS

Your Data Matters Poster